Meeting on Monday March 27th, 2017 “A Visit with Katie Bentley”

Public Policy Coordinator for the Commonwealth Council on Developmental Disabilities

Katie is the mother of two children with developmental disabilities.  Katie’s work in policy began many years ago when she traveled to Washington DC to advocate for children receiving SSI.  Her work improved children’s services and opened the door for children’s advocacy nationally for the first time in nearly twenty years.  Shortly after, Katie published her story as a mother of a child with disability in The Shriver Report, by Maria Shiver.  In Kentucky, Katie and her son worked with advocacy leaders to influence the passage of the Restraint and Seclusion Regulation in KY schools.  Katie’s current work at the council includes educating legislators about how laws will impact persons with disabilities and their families and building stronger relationships with legislators and communities.

Save the date:

Please Remember, April is Autism Awareness Month

**    April 11th – May 11th, – “Social Group for Adolescents and Young Adults with Autism Spectrum Disorder” at St. Michael’s   Episcopal Church, 2025 Bellefonte Drive, Lexington. 6:30PM – 8:00 PM

**    April 22nd,   Autism workshop “After School Special; Independence for Adolescence and Adults with Autism” 9:00AM – 3:00 PM at Tates Creek Christian Church, 3150 Tates Creek Road, Lexington, KY.

**    April 8th,   A discussion on “The future of Medicaid and the impact on the future of services and support for Kentuckians and their families.”  At The Kentucky Protection & Advocacy Office (P&A 5 Mill Creek Park, Frankfort, KY, 9:30AM

**     April 22nd Femme Fatales WMC, ACHA Chapter, Ride for Autism, The ride starts at 10:00 AM at Lexington Indian and ends at Proud Mary Honky Tonk. – Contact moc.kooltuonull@cmwffahcam

For a continuous update on what is happening in the world of autism care visit our website at www.asbg.org or join our information and discussion group at http://health.groups.yahoo.com/group/ASBG/. Facebook: https://www.facebook-com/Autism-Society-of-the-Bluegrass and YouTube channel-ASBG Kentucky

Please remember to send in your annual membership dues of $12.00 to The Treasurer, ASBG, P.O. Box 24212, Lexington, Kentucky 40524-2412. Also, if you prefer to receive these notices by email please email Sara at moc.liamgnull@snegarpsaras.

St Michael’s Episcopal Church is on Bellefonte Dr., off Zandale Dr., between Nicholasville Rd. and Lansdowne Dr.  Feel free to call 859-299-9000 for directions.  Free childcare will be provided at all meetings. Meetings are the last Monday of the month (except May and November) at 6:30pm.

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April is Autism Awareness Month

April is Autism Awareness Month and with that comes plenty of events related to Autism education and helping those with Autism. Along with our annual Workshop on April 22nd, we have plenty of other Autism related events to share with you. See below for details:

A Social Group for Adolescents and Young Adults with Autism Spectrum Disorder will begin on Tuesday, April 11th. See the flyer below for details:

One of our own, Mel Tyner-Wilson is hosting a Pink Zebra party to benefit Autism Society of the Bluegrass. If you would like to RSVP, please see the flyer below for details and RSVP no later than March 31st at 8:00 p.m.

Femme Fatales WMC is hosting a Bike Ride to benefit Autism Society of the Bluegrass on April 22nd. *Please note that this is the same day as our Annual Autism Workshop, so please plan accordingly.

There will also be other events during the month of April that will be posted soon, so keep an eye on the website for additional events.

Posted in Meetings

Police Meet & Greet at Village Branch Library This Saturday 3/4/17

“A University of Kentucky student is teaming with local police to provide education about interacting with individuals with autism spectrum disorder (ASD).”

The next Meet & Greet is scheduled for this Saturday, March 4, 2017 at the Village Branch of the Lexington Public Library from 10:00 a.m. to 12:00 p.m. This will be held in the conference room at the back of the library. Ask library staff for directions upon entry.

Below is a link to the story with another upcoming Meet & Greet date as well:

https://education.uky.edu/blog/2017/02/01/uk-student-develops-program-to-allay-police-fears-in-autism-community/

 

Posted in Meetings

Meeting on Monday, February 27th, 2017 “Gastrointestinal Issues and Concerns for the Child with Autism”

Meeting on Monday, February 27th, 2017

6:30 – 8:30 PM

At St. Michael’s Episcopal Church

2025 Bellefonte Drive, Lexington, Kentucky

Please join us as the ASBG Presents:

“Gastrointestinal Issues and Concerns for the Child with Autism”

George J. Fuchs, III, MD

Professor of Pediatrics and Chief, Pediatric Gastroenterology, Hepatology, and Nutrition University of Kentucky College of Medicine and Kentucky Children’s Hospital. Dr. Fuchs performed his undergraduate and medical studies at the University of Missouri, Pediatric residency and postgraduate fellowships in Geographic Medicine and Pediatric Gastroenterology-Nutrition at Tuft’s New England Medical Center and Pediatric Infectious Disease and Pediatric Gastroenterology-Nutrition at the University of Texas Health Science Center at Houston.

Dr. Fuchs is past Chair, GI Committee of the Autism Treatment Network and has been involved in health and nutrition policy working with the World Health Organization and World Bank on malnutrition, diarrheal disease, and low birth weight, a member of the International Expert Consensus Group on the compositional requirements of infant formula to support the development of a Codex Aliment Arius standard, and the NIH on food allergy, among others. He is past Chair, Nutrition Committee and on the Executive Counsel of the North American Society of Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN) and is currently on the Editorial Board for the Journal of Pediatric Gastroenterology and Nutrition.

For all parents, dealing with this month’s meeting topic can create some anxiety. For parents of children identified on the spectrum this problem can be magnified by communication issues. Join us as we learn what our loved ones experience and discuss some recommended strategies for addressing these important life problems.

Save the date:

ASBG March 27th Meeting – Marylee Underwood, Developmental Disabilities Council

Autism workshop – “Mental, Behavioral, and Financial Health for Teens and Adults with Autism “on Saturday, April 22, Tates Creek Christian Church, 3150 Tates Creek Road. Presenters include, Dr Caitlin Allen discussing Mental health and anxiety in young adults, behavioral consultant Amanda Ralston, attorney Karen Perch on Special Needs Trusts and ABLE Accounts, Eric Zimmerman, an adult with autism, and more. Further details will follow. – Please visit the 874K Coalition website http://www.wherevent.com/detail/Advocacy-Action-Network-874K-Disabilities-Coalition-Advocacy-Event to view the upcoming day at the Capital Event.

For a continuous update on what is happening in the world of autism care visit our website at www.asbg.org or join our information and discussion group at http://health.groups.yahoo.com/group/ASBG/. Facebook: https://www.facebook-com/Autism-Society-of-the-Bluegrass and YouTube channel-ASBG Kentucky

Please remember to send in your annual membership dues of $12.00 to The Treasurer, ASBG, P.O. Box 24212, Lexington, Kentucky 40524-2412. Also, if you prefer to receive these notices by email please email Sara at moc.liamgnull@snegarpsaras.

St Michael’s Episcopal Church is on Bellefonte Dr., off Zandale Dr., between Nicholasville Rd. and Lansdowne Dr. Feel free to call 859-299-9000 for directions. Free childcare will be provided at all meetings. Meetings are the last Monday of the month (except May and November) at 6:30pm.

 

Posted in Meetings

Have you registered for the Kentucky Works Transition Summit and Community Conversation?

We are nearing capacity and are very excited to sit down with everyone to discuss the future of employment for people with disabilities in Kentucky.

If you have not registered or if you know someone who might not be on this list and would greatly add to the conversation, register @: https://www.eventbrite.com/e/2017-kentuckyworks-transition-summit-community-conversation-tickets-31416572815 or send your name, contact information and your role with transition age youth (educator, advocate, agency provider, parent, etc) by e-mail to vog.yknull@etihW.ffeJ Please use the subject line “KW Summit Registration.”

The one-day event is scheduled for February 28 from 9 am-3:30 pm at the Administrative Office of the Courts, 1001 Vandalay Drive, Frankfort, KY 40601. A portion of our day will be devoted to a Statewide Community Conversation, led by national transition expert Dr. Erik Carter of Vanderbilt, for us as a state to systematically identify what is working well, what we need to improve upon, and critical next steps to improve transition outcomes

There is no registration cost for this event. We have 200 spots available on a first come basis.

We are looking forward to seeing you there.

Jason Jones

KentuckyWorks Project Coordinator

UK Human Development Institute

859-552-3012

ude.ykunull@senoj.pJ

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Medicaid Block Grants

As many of you know, our healthcare is changing due to the new administration. Many of our population are very concerned about these changes as they effect so many of us. Here is a link with some useful information about the changes. *This is not endorsed by ASBG, but some may find it useful. http://khn.org/news/block-grants-medicaid-faq/

You are encouraged to contact your Government Elected Officials. Here is where you can find their current phone number, address, and email listing:
https://www.usa.gov/elected-officials

Posted in News

1/30/2017 Charting the Waters of Current and Future Care

Kelli Sheets –Hart Support Living Grant Program State Coordinator, Cabinet for Health and Family Services

Cathy Allgoud Murphy – Board Member, Center for Accessible Living.

Jessica Frye – Bluegrass.org / ACCESS Michelle P Waiver Program Supervisor

A caregiver’s work is never done and sometimes life throws curve balls. We can be caught not fully prepared for the continued care of our loved ones. It is important that as early as possible we begin to plan for such likelihoods so that we can influence the level and quality of care and support that our loved ones receive in our absence or reduced presence. Kelli Sheets, Cathy Murphy, and Jessica Frye will present opportunities and paths that are opened to us both on an individual and group level that can help us face the present and future to accessible living.

Save the date:

ASBG    February 27th meeting – Dr Fuchs, Pediatric Gastroenterologist, University of Kentucky

ASBG    March 27th Meeting – Marylee Underwood, Developmental Disabilities Council

Autism workshop – April; details will be available soon.

Please visit the 874K Coalition website http://www.wherevent.com/detail/Advocacy-Action-Network-874K-Disabilities-Coalition-Advocacy-Event to view the upcoming day at the Capital Event.

For a continuous update on what is happening in the world of autism care visit our website at www.asbg.org or join our information and discussion group at http://health.groups.yahoo.com/group/ASBG/. Facebook: https://www.facebook-com/Autism-Society-of-the-Bluegrass and YouTube channel-ASBG Kentucky

Please remember to send in your annual membership dues of $12.00 to The Treasurer, ASBG, P.O. Box 24212, Lexington, Kentucky 40524-2412. Also, if you prefer to receive these notices by email please email Sara at moc.liamgnull@snegarpsaras.

St Michael’s Episcopal Church is on Bellefonte Dr., off Zandale Dr., between Nicholasville Rd. and Lansdowne Dr.  Feel free to call 859-299-9000 for directions.  Free childcare will be provided at all meetings. Meetings are the last Monday of the month (except May and November) at 6:30pm.

Presenters for January 30th meeting.

Kelli Sheets – Hart Support Living Grant Program State Coordinator; Personal Care Attendant Program State Coordinator, Department for Aging and Independent Living (DAIL), Cabinet for Health and Family Services

Kelli has been the Hart Supported Living State Coordinator since September, 2015, but has been employed by the Department for Aging and Independent Living since May 2014.  The Hart Supported Living program provides flexible funding to disabled Kentuckians for supports that promote independence to live at home and function within the community.  Types of supports typical for this program include, but are not limited to:  supported living community resource developers; home modifications for accessibility; homemaker services; personal care services; transportation; adaptive and therapeutic equipment; and in-home training and home management assistance.  Applications for funding are accepted once a year and are due on or before April 1st.

Cathy Allgoud Murphy – Board Member, Center for Accessible Living

The Center for Accessible Living in Louisville is a Center for Independent Living (CIL) of which there are four in Kentucky.  The center works across all disabilities, helping individuals obtain independent living.  The Center for Accessible Living is a member of the State Independent Living Council (SILC) and partners with the CILs and the Department of Aging and Independent Living to ensure the existence of appropriate planning and coordination of resources to meet the independent living needs of people with disabilities in the state.  The independent living philosophy is one of consumer control, peer support, self-help, self-determination, equal access, and individual and systems advocacy in order to maximize the leadership, empowerment, independence and productivity of individuals with disabilities.  The SILC also works to assure the integration and full inclusion of individuals with disabilities into the mainstream of society. The SILC Board members are appointed by governor to serve on the board of directors for the non-profit corporation to ensure fiscal soundness and responsibility and ensures compliance with laws & regulations.

Jessica Frye – Michelle P Waiver Program Supervisor

Jessica has worked in the disability field for 15 years. She currently is the Michelle P waiver case management supervisor at Bluegrass.org/Access. Ms. Frye provides a unique perspective of waiver services as she has an 11-year-old son diagnosed with Autism who utilizes the services. Ms. Frye will be presenting information about the waiver and the application process for the waiver waiting list.

 

Posted in Meetings

12/5 Holiday Potluck

Please join us Monday, December 5, for our annual HOLIDAY POTLUCK! Whereas we normally have childcare, all children and other family members are invited to join us for the meal. ASBG will provide a few basics and we’d love for you to bring a little something, if you can (and still come if you can’t).

As always, we hope to have a small holiday market with wonderful craft items made by a couple of our members; more details will follow.

Put the Annual ASBG Holiday Potluck on your calendar for Monday, December 5, at 6:30pm, at St. Michael’s Episcopal Church! See you then.

Posted in Meetings

10/12 A chat with the Fayette County School Superintendent

Dr. Emmanuel “Manny” Caulk
Fayette County School District Superintendent

We will discuss the Superintendent’s plan for students with ASD, closing the achievement gap, and the special education audit that was completed earlier in the year (ASD was the only disability category specifically discussed in that audit). Dr. Caulk joined the district just over one year ago.

Before being appointed the Superintendent of the Fayette County Public Schools, Emmanuel Caulk was school superintendent in Portland, the largest school district in Maine, since 2012, which has over 7,000 students. Before that he was an assistant superintendent in the School District of Philadelphia, which serves over 167,000 students. He was also deputy chief for the office of instruction and leadership support, and was assistant superintendent for high schools of the 46,000-student East Baton Rouge Parish School System.

Emmanuel Caulk had been in education for 19 years, with experience as a special education teacher in a juvenile detention facility, an elementary principal, and a high school principal. He also practiced law as an education law attorney and an assistant prosecutor for the state of New Jersey. Caulk earned a bachelor’s and a master’s degree from the University of Delaware and a law degree from Widener University School of Law.

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9/26 KDE Provides Guidance for Districts to Support students with Autism

Jeffrey Coles, MA

Jeffrey Coles began his career at the Kentucky Department of Education, 5 years ago, as a Professional Growth and Effectiveness System Program Administrator. In this role he supported the teacher evaluation process by facilitating the Student Voice Survey to solicit student feedback for over 80% of certified teachers in Kentucky. His Current focus is with Federal and State regulation regarding students with disabilities. His primary foci are students with Emotional Behavior Disorder and Autism in the Division of Learning Services. With a M.A. in Public Administration and Education, and a passion for programs and services supporting at-risk students, Mr. Coles also brings experience as a Home School Liaison and Exceptional Student Teacher with the Fayette County Public Schools. In addition, he brings private sector experience working with quality improvement initiatives as a Senior Consultant for the Center for Quality People and Organizations.

Jeffrey is socially conscience, goal driven, and results-oriented having worked on local community and district initiatives including the Mayor’s Summer Youth Employment Initiative in Fayette County. Jeffrey enjoys physically working out and spending time with his wife, Dominika and children, Jaelyn, Jaryne, Deasha, Tim, JeMariah and Dominic.

Posted in Meetings