Supports for the Newly Diagnosed

***READ ABOUT RSVP BELOW***

Cardinal Hill needs your RSVPs! They’ve heard from a few people they didn’t realize they needed to reply, but they really need to nail down numbers as they are planning some food. Please click the attachment for details and call 859-367-7127 to RSVP!

Thanks,

Sara Spragens, ASBG President

Autism Society of the Bluegrass and HealthSouth Cardinal Hill Rehabilitation Hospital present:

Autism Spectrum Disorders: What to Expect, What to Do? With Sara Spragens and Patti Logsdon
Basic facts about autism, issues in education and assumptions about the intellectual potential that exists in children on the spectrum. Learn about the obstacles in which parents, siblings, and teachers face, common interventions, and resources for families. Wednesday, April 26, 2017 Cardinal Hill Rehabilitation Hospital Center of Learning 2050 Versailles Road, Lexington, KY 6:00-7:00 Presentation 7:00-8:00 Q & A and tour HealthSouth Cardinal Hill Pediatric Therapy Department Light Refreshments will be served RSVP: 859-367-7127

Posted in Meetings

ASBG Meeting April 24, 2017

Meeting on Monday, April 24th, 2017
6:30 – 8:30 PM
At St. Michael’s Episcopal Church
2025 Bellefonte Drive, Lexington, Kentucky

Please join us as the ASBG Presents:

“Retirement, Social Security and Medicaid, One Mother’s Journey” with Arlene Jacina
Arlene Jacina is a school teacher and has worked with children in the Fayette County School System for over two decades. Her son Robbie has autism so she has been an advocate for him for twenty-something years. Arlene has practical experience securing medical, educational, and Michelle P waiver services for Robbie. Last year due to special circumstances, Robbie became eligible for social security. This began another level of advocacy. Arlene will share this difficult journey with families attending this Autism Awareness month’s meeting. Families will want to hear how parental retirement, Medicaid, and Social Security impact waiver services. Join us for a truly informative case discussion.

Save the date:

Please Remember, April is Autism Awareness Month
** ASBG presentation at Cardinal Hill for caregivers of newly diagnosed children this Wednesday, the 26th, at 6pm, followed by a Q & A and tour of the pediatric therapy department. RSVP: 859-367-7127.
** May 6: Femme Fatales WMC, ACHA Chapter, Ride for Autism. The ride starts at 10:00 AM at Lexington
Indian and ends at Proud Mary Honky Tonk. – Contact moc.kooltuonull@cmwffahcam.
** No ASBG meeting in May
** The 2017 Bluegrass Autism Walk will be Sunday, September 10, 2-5pm. Mark your calendars!

For a continuous update on what is happening in the world of autism care visit our website at www.asbg.org or join our information and discussion group at http://health.groups.yahoo.com/group/ASBG/. Facebook: https://www.facebook-com/Autism-Society-of-the-Bluegrass and YouTube channel-ASBG Kentucky

Please remember to send in your annual membership dues of $12.00 to The Treasurer, ASBG, P.O. Box 24212, Lexington, Kentucky 40524-2412. Also, if you prefer to receive these notices by email please email Sara at moc.liamgnull@snegarpsaras.

 

Posted in Meetings

Don’t Miss Our Annual Workshop on April 22, 2017

Autism Society of the Bluegrass Presents Our Annual Workshop

After School Special: Independence for Adolescents and Adults with Autism

April 2017 workshop flyer

Tates Creek Christian Church
April 22, 2017
Registration: 8:30
Workshop: 9:00AM-3:00PM

Speakers and Topics Include

Eric Zimmerman – Living with Autism
Dr. Caitlin Allen – Mental Health and Anxiety
Karen Perch – Legal protections: Trusts and Able Accounts
Marilyn Barnett – Preparation for Employment
Amanda Ralston – ABA Tools for Functional Skills

Registration $25 per person, $10 for additional team members. Lunch provided. Scholarships are available. Contact moc.liamgnull@snegarpsaras for more info or scholarship requests.

Eric Zimmerman

Eric D. Zimmerman is Founder and Chairman of The Buddy Project, and understands technology’s ability to unlock some of the everyday barriers faced by the special-needs community: The 29-year-old has Asperger’s syndrome, a form of autism which hinders social interaction. Eric grew to recognize that, unlike him, many persons with disabilities may have little access to commonplace household technologies as their own email account. He decided to take action. Certified in computer repair and rehabilitation, his technological savvy and drive to help others have been brightening lives. Since 2007, his not-for-profit organization has provided free computers and other technologies to qualified IDD candidates. Used donated computers are the starting point for The Buddy Project’s initiative. Every device is completely refurbished and custom-tailored to meet the specific needs of its intended recipient. Eric also has a special interest in Surgical IT and he volunteers one day a week at St. Agnes Healthcare in Baltimore where he learns about Surgical Equipment and Instruments as well as help the hospital work more efficiently. He also serves on the Board of Directors of Service Coordination, Inc., the largest provider in Maryland of targeted case management for people with disabilities.

Dr. Caitlin Allen

Dr. Caitlin Allen is a licensed clinical psychologist who has worked with individuals who have a diagnosis on the autism spectrum and their families since the early 1990s. Dr Allen attended graduate school at the California School of Professional Psychology in San Diego where her dissertation research was on stress and coping in parents of children with ASD. Dr. Allen’s training included multiple post-doctoral fellowships including the University of California MIND Institute and University of Tennessee Boling Center for Developmental Disabilities. She has been a clinical associate professor at the University of Kentucky College of Education and is currently an associate professor in the university’s College of Medicine. She lives in Lexington, KY, with her husband, dean of the UK College of Pharmacy Dr. Kip Guy, 2 children and 2 standard poodles.

Karen Perch

Karen Perch is an estate planning attorney whose practice has a focus on assisting people with disabilities and their families create the legal documents necessary to protect and safeguard those they love. Karen is also very knowledgeable in legal guardianship and Social Security issues. As the oldest of ten children, she has also been an advocate for her youngest sister who has an intellectual disability who currently lives in Massachusetts. Karen is a member of the Academy of Special Needs Planners and a founding member of The Arc of Central Kentucky.

Marilyn Barnett

Marilyn and her husband Lonnie live in Clay City, KY with their son Patrick who received a diagnosis of Autism in 1997. Marilyn served as a member of the Powell County Higher Education Development Board for three years and has been a member/officer of the Powell County Parents’ and Professionals’ Autism Support Group (now PUSH) for twenty years. In 2016, Marilyn became certified to provide Family Peer Support Services. Currently, Marilyn is the Program Director for Key Assets Foundation (Lex., KY) where she administers an Office of Vocational Rehabilitation (OVR) establishment grant titled Opportunities to Participate & Transform or “OPT In. The OPT In concept focuses on advocating for individuals (ages 14 to 24) with all types of abilities to receive pre-employment skills training to help prepare them and their families for the world of employment.

Amanda Ralston, BCaBA, LABA

In the past sixteen years, Ms. Ralston has worked with children with Autism Spectrum Disorders and other developmental disabilities, as well as providing education to parents and professionals interested in Applied Behavior Analysis and Verbal Behavior methodologies in Kentucky, Indiana, and Ohio. Amanda is the founder and President of Verbal Behavior Consulting, Inc., which provides early intervention, focused and comprehensive treatment, Behavior Supports Services via the Michelle P. Waiver in Kentucky, consultation, functional assessments, behavioral language assessments, IEP review and developments, and program development and supervision to multiple school districts throughout the state in addition to working in the homes of families of children with autism.

Posted in Meetings

April Is Autism Awareness Month

April is Autism Awareness Month and with that comes plenty of events related to Autism education and helping those with Autism. Along with our annual Workshop on April 22nd, we have plenty of other Autism related events to share with you. See below for details:

We will have plenty of speakers for the Workshop on April 22nd. Details are forthcoming. Stay tuned.

On April 8th, 2017 at 9:30 a.m. Kentucky Protection and Advocacy is hosting a Discussion on the Future of Medicaid in Frankfort at 5 Mill Creek Park. You must RSVP by contacting vog.yknull@enotS.anriM or calling 1-800-372-2988. You can find additional information on this event by going to the Facebook event page, linked below:

https://www.facebook.com/events/1611161425641611/

A Social Group for Adolescents and Young Adults with Autism Spectrum Disorder will begin on Tuesday, April 11th. See the flyer below for details:

THIS EVENT HAS BEEN POSTPONED!!!

One of our own, Mel Tyner-Wilson is hosting a Pink Zebra party to benefit Autism Society of the Bluegrass on April 9th, 2017 at 2:00 p.m. If you would like to RSVP, please see the flyer below for details and RSVP no later than March 31st at 8:00 p.m.

This event has been POSTPONED until May 6th! Sorry for the inconvenience!

Femme Fatales WMC is hosting a Bike Ride to benefit Autism Society of the Bluegrass on April 22nd. *Please note that this is the same day as our Annual Autism Workshop, so please plan accordingly.

Dianne Johnson has been working very hard to put together a Sensory Fit event at Body Fit Punch for our children with Autism who also have sensory issues. The first meeting is on April 22, 2017 from 12:30-1:30 p.m.

The Lexington Fire Department will host it’s annual Autism Safety Day on April 29th, 2017 from 12:00 p.m. – 4:00 p.m. at Fire Station 20 at 3001 Arrowhead Road off of Harrodsburg Road. This is the same location as last year.

There will also be other events during the month of April that will be posted soon, so keep an eye on the website for additional events.

Posted in Meetings

Meeting on Monday March 27th, 2017 “A Visit with Katie Bentley”

Public Policy Coordinator for the Commonwealth Council on Developmental Disabilities

Katie is the mother of two children with developmental disabilities.  Katie’s work in policy began many years ago when she traveled to Washington DC to advocate for children receiving SSI.  Her work improved children’s services and opened the door for children’s advocacy nationally for the first time in nearly twenty years.  Shortly after, Katie published her story as a mother of a child with disability in The Shriver Report, by Maria Shiver.  In Kentucky, Katie and her son worked with advocacy leaders to influence the passage of the Restraint and Seclusion Regulation in KY schools.  Katie’s current work at the council includes educating legislators about how laws will impact persons with disabilities and their families and building stronger relationships with legislators and communities.

Save the date:

Please Remember, April is Autism Awareness Month

**    April 11th – May 11th, – “Social Group for Adolescents and Young Adults with Autism Spectrum Disorder” at St. Michael’s   Episcopal Church, 2025 Bellefonte Drive, Lexington. 6:30PM – 8:00 PM

**    April 22nd,   Autism workshop “After School Special; Independence for Adolescence and Adults with Autism” 9:00AM – 3:00 PM at Tates Creek Christian Church, 3150 Tates Creek Road, Lexington, KY.

**    April 8th,   A discussion on “The future of Medicaid and the impact on the future of services and support for Kentuckians and their families.”  At The Kentucky Protection & Advocacy Office (P&A 5 Mill Creek Park, Frankfort, KY, 9:30AM

**     April 22nd Femme Fatales WMC, ACHA Chapter, Ride for Autism, The ride starts at 10:00 AM at Lexington Indian and ends at Proud Mary Honky Tonk. – Contact moc.kooltuonull@cmwffahcam

For a continuous update on what is happening in the world of autism care visit our website at www.asbg.org or join our information and discussion group at http://health.groups.yahoo.com/group/ASBG/. Facebook: https://www.facebook.com/Autism-Society-of-the-Bluegrass and YouTube channel-ASBG Kentucky

Please remember to send in your annual membership dues of $12.00 to The Treasurer, ASBG, P.O. Box 24212, Lexington, Kentucky 40524-2412. Also, if you prefer to receive these notices by email please email Sara at moc.liamgnull@snegarpsaras.

St Michael’s Episcopal Church is on Bellefonte Dr., off Zandale Dr., between Nicholasville Rd. and Lansdowne Dr.  Feel free to call 859-299-9000 for directions.  Free childcare will be provided at all meetings. Meetings are the last Monday of the month (except May and November) at 6:30pm.

Posted in Meetings

Police Meet & Greet at Village Branch Library This Saturday 3/4/17

“A University of Kentucky student is teaming with local police to provide education about interacting with individuals with autism spectrum disorder (ASD).”

The next Meet & Greet is scheduled for this Saturday, March 4, 2017 at the Village Branch of the Lexington Public Library from 10:00 a.m. to 12:00 p.m. This will be held in the conference room at the back of the library. Ask library staff for directions upon entry.

Below is a link to the story with another upcoming Meet & Greet date as well:

https://education.uky.edu/blog/2017/02/01/uk-student-develops-program-to-allay-police-fears-in-autism-community/

 

Posted in Meetings

Meeting on Monday, February 27th, 2017 “Gastrointestinal Issues and Concerns for the Child with Autism”

Meeting on Monday, February 27th, 2017

6:30 – 8:30 PM

At St. Michael’s Episcopal Church

2025 Bellefonte Drive, Lexington, Kentucky

Please join us as the ASBG Presents:

“Gastrointestinal Issues and Concerns for the Child with Autism”

George J. Fuchs, III, MD

Professor of Pediatrics and Chief, Pediatric Gastroenterology, Hepatology, and Nutrition University of Kentucky College of Medicine and Kentucky Children’s Hospital. Dr. Fuchs performed his undergraduate and medical studies at the University of Missouri, Pediatric residency and postgraduate fellowships in Geographic Medicine and Pediatric Gastroenterology-Nutrition at Tuft’s New England Medical Center and Pediatric Infectious Disease and Pediatric Gastroenterology-Nutrition at the University of Texas Health Science Center at Houston.

Dr. Fuchs is past Chair, GI Committee of the Autism Treatment Network and has been involved in health and nutrition policy working with the World Health Organization and World Bank on malnutrition, diarrheal disease, and low birth weight, a member of the International Expert Consensus Group on the compositional requirements of infant formula to support the development of a Codex Aliment Arius standard, and the NIH on food allergy, among others. He is past Chair, Nutrition Committee and on the Executive Counsel of the North American Society of Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN) and is currently on the Editorial Board for the Journal of Pediatric Gastroenterology and Nutrition.

For all parents, dealing with this month’s meeting topic can create some anxiety. For parents of children identified on the spectrum this problem can be magnified by communication issues. Join us as we learn what our loved ones experience and discuss some recommended strategies for addressing these important life problems.

Save the date:

ASBG March 27th Meeting – Marylee Underwood, Developmental Disabilities Council

Autism workshop – “Mental, Behavioral, and Financial Health for Teens and Adults with Autism “on Saturday, April 22, Tates Creek Christian Church, 3150 Tates Creek Road. Presenters include, Dr Caitlin Allen discussing Mental health and anxiety in young adults, behavioral consultant Amanda Ralston, attorney Karen Perch on Special Needs Trusts and ABLE Accounts, Eric Zimmerman, an adult with autism, and more. Further details will follow. – Please visit the 874K Coalition website http://www.wherevent.com/detail/Advocacy-Action-Network-874K-Disabilities-Coalition-Advocacy-Event to view the upcoming day at the Capital Event.

For a continuous update on what is happening in the world of autism care visit our website at www.asbg.org or join our information and discussion group at http://health.groups.yahoo.com/group/ASBG/. Facebook: https://www.facebook-com/Autism-Society-of-the-Bluegrass and YouTube channel-ASBG Kentucky

Please remember to send in your annual membership dues of $12.00 to The Treasurer, ASBG, P.O. Box 24212, Lexington, Kentucky 40524-2412. Also, if you prefer to receive these notices by email please email Sara at moc.liamgnull@snegarpsaras.

St Michael’s Episcopal Church is on Bellefonte Dr., off Zandale Dr., between Nicholasville Rd. and Lansdowne Dr. Feel free to call 859-299-9000 for directions. Free childcare will be provided at all meetings. Meetings are the last Monday of the month (except May and November) at 6:30pm.

 

Posted in Meetings

Have you registered for the Kentucky Works Transition Summit and Community Conversation?

We are nearing capacity and are very excited to sit down with everyone to discuss the future of employment for people with disabilities in Kentucky.

If you have not registered or if you know someone who might not be on this list and would greatly add to the conversation, register @: https://www.eventbrite.com/e/2017-kentuckyworks-transition-summit-community-conversation-tickets-31416572815 or send your name, contact information and your role with transition age youth (educator, advocate, agency provider, parent, etc) by e-mail to vog.yknull@etihW.ffeJ Please use the subject line “KW Summit Registration.”

The one-day event is scheduled for February 28 from 9 am-3:30 pm at the Administrative Office of the Courts, 1001 Vandalay Drive, Frankfort, KY 40601. A portion of our day will be devoted to a Statewide Community Conversation, led by national transition expert Dr. Erik Carter of Vanderbilt, for us as a state to systematically identify what is working well, what we need to improve upon, and critical next steps to improve transition outcomes

There is no registration cost for this event. We have 200 spots available on a first come basis.

We are looking forward to seeing you there.

Jason Jones

KentuckyWorks Project Coordinator

UK Human Development Institute

859-552-3012

ude.ykunull@senoj.pJ

Posted in Meetings

Medicaid Block Grants

As many of you know, our healthcare is changing due to the new administration. Many of our population are very concerned about these changes as they effect so many of us. Here is a link with some useful information about the changes. *This is not endorsed by ASBG, but some may find it useful. http://khn.org/news/block-grants-medicaid-faq/

You are encouraged to contact your Government Elected Officials. Here is where you can find their current phone number, address, and email listing:
https://www.usa.gov/elected-officials

Posted in News

1/30/2017 Charting the Waters of Current and Future Care

Kelli Sheets –Hart Support Living Grant Program State Coordinator, Cabinet for Health and Family Services

Cathy Allgoud Murphy – Board Member, Center for Accessible Living.

Jessica Frye – Bluegrass.org / ACCESS Michelle P Waiver Program Supervisor

A caregiver’s work is never done and sometimes life throws curve balls. We can be caught not fully prepared for the continued care of our loved ones. It is important that as early as possible we begin to plan for such likelihoods so that we can influence the level and quality of care and support that our loved ones receive in our absence or reduced presence. Kelli Sheets, Cathy Murphy, and Jessica Frye will present opportunities and paths that are opened to us both on an individual and group level that can help us face the present and future to accessible living.

Save the date:

ASBG    February 27th meeting – Dr Fuchs, Pediatric Gastroenterologist, University of Kentucky

ASBG    March 27th Meeting – Marylee Underwood, Developmental Disabilities Council

Autism workshop – April; details will be available soon.

Please visit the 874K Coalition website http://www.wherevent.com/detail/Advocacy-Action-Network-874K-Disabilities-Coalition-Advocacy-Event to view the upcoming day at the Capital Event.

For a continuous update on what is happening in the world of autism care visit our website at www.asbg.org or join our information and discussion group at http://health.groups.yahoo.com/group/ASBG/. Facebook: https://www.facebook-com/Autism-Society-of-the-Bluegrass and YouTube channel-ASBG Kentucky

Please remember to send in your annual membership dues of $12.00 to The Treasurer, ASBG, P.O. Box 24212, Lexington, Kentucky 40524-2412. Also, if you prefer to receive these notices by email please email Sara at moc.liamgnull@snegarpsaras.

St Michael’s Episcopal Church is on Bellefonte Dr., off Zandale Dr., between Nicholasville Rd. and Lansdowne Dr.  Feel free to call 859-299-9000 for directions.  Free childcare will be provided at all meetings. Meetings are the last Monday of the month (except May and November) at 6:30pm.

Presenters for January 30th meeting.

Kelli Sheets – Hart Support Living Grant Program State Coordinator; Personal Care Attendant Program State Coordinator, Department for Aging and Independent Living (DAIL), Cabinet for Health and Family Services

Kelli has been the Hart Supported Living State Coordinator since September, 2015, but has been employed by the Department for Aging and Independent Living since May 2014.  The Hart Supported Living program provides flexible funding to disabled Kentuckians for supports that promote independence to live at home and function within the community.  Types of supports typical for this program include, but are not limited to:  supported living community resource developers; home modifications for accessibility; homemaker services; personal care services; transportation; adaptive and therapeutic equipment; and in-home training and home management assistance.  Applications for funding are accepted once a year and are due on or before April 1st.

Cathy Allgoud Murphy – Board Member, Center for Accessible Living

The Center for Accessible Living in Louisville is a Center for Independent Living (CIL) of which there are four in Kentucky.  The center works across all disabilities, helping individuals obtain independent living.  The Center for Accessible Living is a member of the State Independent Living Council (SILC) and partners with the CILs and the Department of Aging and Independent Living to ensure the existence of appropriate planning and coordination of resources to meet the independent living needs of people with disabilities in the state.  The independent living philosophy is one of consumer control, peer support, self-help, self-determination, equal access, and individual and systems advocacy in order to maximize the leadership, empowerment, independence and productivity of individuals with disabilities.  The SILC also works to assure the integration and full inclusion of individuals with disabilities into the mainstream of society. The SILC Board members are appointed by governor to serve on the board of directors for the non-profit corporation to ensure fiscal soundness and responsibility and ensures compliance with laws & regulations.

Jessica Frye – Michelle P Waiver Program Supervisor

Jessica has worked in the disability field for 15 years. She currently is the Michelle P waiver case management supervisor at Bluegrass.org/Access. Ms. Frye provides a unique perspective of waiver services as she has an 11-year-old son diagnosed with Autism who utilizes the services. Ms. Frye will be presenting information about the waiver and the application process for the waiver waiting list.

 

Posted in Meetings