Medicaid Block Grants

As many of you know, our healthcare is changing due to the new administration. Many of our population are very concerned about these changes as they effect so many of us. Here is a link with some useful information about the changes. *This is not endorsed by ASBG, but some may find it useful. http://khn.org/news/block-grants-medicaid-faq/

You are encouraged to contact your Government Elected Officials. Here is where you can find their current phone number, address, and email listing:
https://www.usa.gov/elected-officials

Posted in News

1/30/2017 Charting the Waters of Current and Future Care

Kelli Sheets –Hart Support Living Grant Program State Coordinator, Cabinet for Health and Family Services

Cathy Allgoud Murphy – Board Member, Center for Accessible Living.

Jessica Frye – Bluegrass.org / ACCESS Michelle P Waiver Program Supervisor

A caregiver’s work is never done and sometimes life throws curve balls. We can be caught not fully prepared for the continued care of our loved ones. It is important that as early as possible we begin to plan for such likelihoods so that we can influence the level and quality of care and support that our loved ones receive in our absence or reduced presence. Kelli Sheets, Cathy Murphy, and Jessica Frye will present opportunities and paths that are opened to us both on an individual and group level that can help us face the present and future to accessible living.

Save the date:

ASBG    February 27th meeting – Dr Fuchs, Pediatric Gastroenterologist, University of Kentucky

ASBG    March 27th Meeting – Marylee Underwood, Developmental Disabilities Council

Autism workshop – April; details will be available soon.

Please visit the 874K Coalition website http://www.wherevent.com/detail/Advocacy-Action-Network-874K-Disabilities-Coalition-Advocacy-Event to view the upcoming day at the Capital Event.

For a continuous update on what is happening in the world of autism care visit our website at www.asbg.org or join our information and discussion group at http://health.groups.yahoo.com/group/ASBG/. Facebook: https://www.facebook-com/Autism-Society-of-the-Bluegrass and YouTube channel-ASBG Kentucky

Please remember to send in your annual membership dues of $12.00 to The Treasurer, ASBG, P.O. Box 24212, Lexington, Kentucky 40524-2412. Also, if you prefer to receive these notices by email please email Sara at moc.liamgnull@snegarpsaras.

St Michael’s Episcopal Church is on Bellefonte Dr., off Zandale Dr., between Nicholasville Rd. and Lansdowne Dr.  Feel free to call 859-299-9000 for directions.  Free childcare will be provided at all meetings. Meetings are the last Monday of the month (except May and November) at 6:30pm.

Presenters for January 30th meeting.

Kelli Sheets – Hart Support Living Grant Program State Coordinator; Personal Care Attendant Program State Coordinator, Department for Aging and Independent Living (DAIL), Cabinet for Health and Family Services

Kelli has been the Hart Supported Living State Coordinator since September, 2015, but has been employed by the Department for Aging and Independent Living since May 2014.  The Hart Supported Living program provides flexible funding to disabled Kentuckians for supports that promote independence to live at home and function within the community.  Types of supports typical for this program include, but are not limited to:  supported living community resource developers; home modifications for accessibility; homemaker services; personal care services; transportation; adaptive and therapeutic equipment; and in-home training and home management assistance.  Applications for funding are accepted once a year and are due on or before April 1st.

Cathy Allgoud Murphy – Board Member, Center for Accessible Living

The Center for Accessible Living in Louisville is a Center for Independent Living (CIL) of which there are four in Kentucky.  The center works across all disabilities, helping individuals obtain independent living.  The Center for Accessible Living is a member of the State Independent Living Council (SILC) and partners with the CILs and the Department of Aging and Independent Living to ensure the existence of appropriate planning and coordination of resources to meet the independent living needs of people with disabilities in the state.  The independent living philosophy is one of consumer control, peer support, self-help, self-determination, equal access, and individual and systems advocacy in order to maximize the leadership, empowerment, independence and productivity of individuals with disabilities.  The SILC also works to assure the integration and full inclusion of individuals with disabilities into the mainstream of society. The SILC Board members are appointed by governor to serve on the board of directors for the non-profit corporation to ensure fiscal soundness and responsibility and ensures compliance with laws & regulations.

Jessica Frye – Michelle P Waiver Program Supervisor

Jessica has worked in the disability field for 15 years. She currently is the Michelle P waiver case management supervisor at Bluegrass.org/Access. Ms. Frye provides a unique perspective of waiver services as she has an 11-year-old son diagnosed with Autism who utilizes the services. Ms. Frye will be presenting information about the waiver and the application process for the waiver waiting list.

 

Posted in Meetings

12/5 Holiday Potluck

Please join us Monday, December 5, for our annual HOLIDAY POTLUCK! Whereas we normally have childcare, all children and other family members are invited to join us for the meal. ASBG will provide a few basics and we’d love for you to bring a little something, if you can (and still come if you can’t).

As always, we hope to have a small holiday market with wonderful craft items made by a couple of our members; more details will follow.

Put the Annual ASBG Holiday Potluck on your calendar for Monday, December 5, at 6:30pm, at St. Michael’s Episcopal Church! See you then.

Posted in Meetings

10/12 A chat with the Fayette County School Superintendent

Dr. Emmanuel “Manny” Caulk
Fayette County School District Superintendent

We will discuss the Superintendent’s plan for students with ASD, closing the achievement gap, and the special education audit that was completed earlier in the year (ASD was the only disability category specifically discussed in that audit). Dr. Caulk joined the district just over one year ago.

Before being appointed the Superintendent of the Fayette County Public Schools, Emmanuel Caulk was school superintendent in Portland, the largest school district in Maine, since 2012, which has over 7,000 students. Before that he was an assistant superintendent in the School District of Philadelphia, which serves over 167,000 students. He was also deputy chief for the office of instruction and leadership support, and was assistant superintendent for high schools of the 46,000-student East Baton Rouge Parish School System.

Emmanuel Caulk had been in education for 19 years, with experience as a special education teacher in a juvenile detention facility, an elementary principal, and a high school principal. He also practiced law as an education law attorney and an assistant prosecutor for the state of New Jersey. Caulk earned a bachelor’s and a master’s degree from the University of Delaware and a law degree from Widener University School of Law.

Posted in Meetings

9/26 KDE Provides Guidance for Districts to Support students with Autism

Jeffrey Coles, MA

Jeffrey Coles began his career at the Kentucky Department of Education, 5 years ago, as a Professional Growth and Effectiveness System Program Administrator. In this role he supported the teacher evaluation process by facilitating the Student Voice Survey to solicit student feedback for over 80% of certified teachers in Kentucky. His Current focus is with Federal and State regulation regarding students with disabilities. His primary foci are students with Emotional Behavior Disorder and Autism in the Division of Learning Services. With a M.A. in Public Administration and Education, and a passion for programs and services supporting at-risk students, Mr. Coles also brings experience as a Home School Liaison and Exceptional Student Teacher with the Fayette County Public Schools. In addition, he brings private sector experience working with quality improvement initiatives as a Senior Consultant for the Center for Quality People and Organizations.

Jeffrey is socially conscience, goal driven, and results-oriented having worked on local community and district initiatives including the Mayor’s Summer Youth Employment Initiative in Fayette County. Jeffrey enjoys physically working out and spending time with his wife, Dominika and children, Jaelyn, Jaryne, Deasha, Tim, JeMariah and Dominic.

Posted in Meetings

In Memoriam of Gabriel Zamora

The Autism Society of the Bluegrass is heartbroken at the loss of one of our beloved children. Gabriel Zamora was gravely injured in an accident Sunday morning and passed away peacefully yesterday. We have long observed and admired the dedication his parents exhibited in helping Gabriel become the impressive, intelligent, and wonderful young man he was, and in striving for his happiness and independence. We hold Isidora, Justin, and their daughters in our hearts and hope they sense our love and support.

Funeral Vigil: 7:00pm on Friday, September 23.
Funeral Liturgy: 8:00am on Saturday, September 24.
All services will be held at
St. Athanasius Orthodox Church
100 Lime Lane
Nicholasville, KY 40356

Please consider a donation to help with the unexpected funeral expenses marked “Gabriel Zamora Memorial.” Other information and online donation instruction appear at http://athanasiusoca.org/2016/09/in-memory-gabriel-zamora/.

We hope the Zamoras feel some small comfort from the embrace of their grief-stricken autism family.

Posted in Meetings

9/13 The PLAY Project

The University of Kentucky, Division of Developmental Behavioral Pediatrics will be hosting The PLAY Project training September 13-14, 2016 in Lexington. KY.

The PLAY Project Survey

The purpose of this survey is to determine the level of interest in this training for professionals, community partners, parents and others interested in learning about this intensive developmental intervention to families of young children with autism spectrum disorders.

Posted in Events

8/29 Autism – The Metamorphosis of a Diagnosis

Dr. Myra Beth Bundy

Dr. Myra Beth Bundy received her bachelor’s degree in Psychology from Transylvania University and her doctoral degree (Ph.D.) in Clinical-Community Psychology from the University of South Carolina. She completed a doctoral internship in Autism and Developmental Disabilities at the TEACCH program at the University of North Carolina at Chapel Hill and a post-doctoral fellowship in Developmental Disabilities at the University of Colorado Health Sciences Center. She is a licensed psychologist in the state of Kentucky and a Professor in the Eastern Kentucky University Department of Psychology.

Dr. Bundy’s specialty in both clinical practice and research relates to disabilities throughout the lifespan, especially the unique developmental differences associated with the autism spectrum. She is a reviewer for the Journal of Autism and Developmental Disorders and for the Journal of Psychological Practice. Dr. Bundy has served as an appointed member of the Kentucky Commission on Autism Spectrum Disorders and has collaborated with the Kentucky Department of Education and the Kentucky Autism Training Center on autism-related grant writing and funded project consultation. Dr. Bundy enjoys working with undergraduate and graduate students in psychology, occupational therapy, communication disorders, and special education and co-directs EKU’s Autism Spectrum Disorder Certificate with faculty from each of these four disciplines. Her combined research and clinical programs involve collaboration between psychology and occupational therapy to create social groups for both children and adults on the autism spectrum, as well as parent consultation groups.

Posted in Meetings

8/28 Bluegrass Autism Walk

Our Bluegrass Autism Walk will be held on a Sunday, August 28 from 2pm to 5pm at the Whitaker Bank Ballpark. We hope you will save the date on your calendar to attend this year’s Walk in support of Autism awareness and advocacy!

Visit bluegrassautismwalk.org for more info.

Posted in Events

7/25 Housing Options for Individuals with Disabilities, including Autism

This is a topic that many parents and caregivers are very anxious about as their loved ones attain adulthood and their pursuit of independence increases. In an effort to gain as much information on what is available to these adventurous adults in the state of Kentucky the ASBG has put together a panel of knowledgeable representatives of local agencies that are familiar with the housing issues in and across the state.

Panel members include

Carolyn Wheeler, Provider Development Specialist, Division of Developmental & Intellectual Disabilities & Human Development Institute, University of Kentucky,

Ray Sexton, Executive Office, Lexington Urban County, Human Rights Commission;

Christy Stambaugh, Director of Aging and Disability Services, LFUCG;

Irene Gooding, Division of Grants and Special Programs, LFUCG

Jeremy Ratliff, Managing Director Multifamily Programs, Kentucky Housing Corporation

Rob Ellis, Kentucky Housing Corporation

Davey King, Managing Director, Housing Contract Administration, Kentucky Housing Corporation

Posted in Meetings