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Previous Meetings
January 25th, 2010
Dr. Belva Collins and Dr. Karen Hager from the UK Dept. of Special
Education will be at the Jan. meeting to discuss how teachers are
trained at UK to work with children/youth with autism.
October 26th
This meeting will focus on how we can best utilize community and therapeutic resources. Some of these resources require financial expenditures beyond the means of many parents hence the need to look at innovative approaches. We have two presentations to lead our discussion in these areas.
Jacoby Malone, a member of the 2009/2010 Lexington Leadership Class - sponsored by Commerce Lexington, will speak about Barrier Free Playgrounds in Lexington.
Gypsie Marsh, a grandparent of a child with Autism will present and lead a discussion of their family's non-profit and ideas for funding therapies.
September 28th
UK Healthcare: Meeting the Needs of Individuals with Disabilities
presented by Mark Birdwhistell
Chief External Affairs Officer, UK HealthCare
Mark D. Birdwhistell currently serves as the Chief External Affairs Officer for the University of Kentucky Medical Center. In this capacity, he represents UK HealthCare at the local, state, and national levels. Prior to this position, Mark served in senior leadership roles in the private and public sector, including Secretary for the Kentucky Cabinet for Health & Family Services and Chief Executive Officer for CHA Health. He has over 30 years' experience in healthcare, with specific expertise in Medicaid policy.
During his tenure as Cabinet Secretary, Mr. Birdwhistell received recognition from the federal government, advocacy organizations, and the national media for his role in the design of Kentucky's progressive Medicaid modernization agenda. He also championed and secured passage of legislation for social worker safety reform and promoted efforts to improve services for Kentucky's aging population. Mr. Birdwhistell has received numerous awards for his achievements in the area of healthcare and disability rights, and has been published on topics such as private health insurance and Medicaid.
August 31
"Simple Strategies to Start the School Year Off Right"
presented by Debbie Lorence, LCSW
Kentucky Autism Training Center
University of Louisville
June 29th
“Accessing Legal Assistance for Children”
presented by Rebecca Ballard DiLoreto
Litigation Director, Children's Law Center
The Children's Law Center now has an office in Lexington! Come and learn about the work done there and meet Ms. DiLoreto. The Children's Law Center represents clients, works on policy and legislative initiatives, and offers public education. Areas of focus include education law, juvenile justice, and child protection. Anyone who has a child with a disability of any kind or who has needs the Center can address is most welcome to join us, so please feel free to forward this. As always, our meetings are free and open to all.
Also, to make sure your member’s voices are heard, a representative of the Kentucky Commission for Children with Special Health Care Needs will be at this meeting to brief us on the upcoming statewide assessment.
The Kentucky Commission for Children with Special Health Care Needs (CCSHCN) will soon begin a statewide needs assessment. The needs assessment is part of the Title V Block Grant Program through the Maternal Child Health Bureau (MCHB). MCHB is a bureau of the Health Resources and Services Administration, U.S. Department of Health and Human Services. The Title V Block Grant Program’s general purpose is the improvement of the health of all mothers and children in the nation.
April 27th
Are you interested in learning a more natural way to detox and heal your child's body? Is your child plagued by yeast overgrowth, bowel issues or a sleep disorder? Would you like to know more about calming techniques? Do you wonder which therapies and treatments would be most beneficial for your child? Then mark your calendars for this meeting when Crystal Johnson, parent of an 18 year old son with autism, will share a unique treatment approach which has been successful for her son.
 Crystal-Johnston-presentation-notes.pdf (206 KB)
March 30th
Ellen Nicholson’s
“From the Cage to the Stage”
A Personal Journey for My Son and me
Autism is a disability that has unique characteristics that must be viewed individually and planned for according. This reality became evident after many sleepless nights and tiring days of trying to make sense of our lives and how to plan for our son. From the Cage to the Stage is a journey from a professional and personal perspective. As a principal of an elementary school and the parent of a child with autism, many lessons were learned and many obstacles were cleared. Combining knowledge of educational system, rights of a person with a disability and how to incorporate personal information will help others to plan their personal journey.
Ellen Nicholson is the parent of two wonderful sons, ages 17 and 22. The 17 year old, Kash has autism, epilepsy and tourettes. Ellen has worked with persons with disabilities for the past 30 years working as an elementary teacher, principal and as a private business owner, consultant and advocate in the disability arena. Ellen is currently pursuing a Doctoral Degree in Educational Leadership with International Studies through the University of Kentucky and works as a private educational consultant and an advocate through The Arc of Kentucky.
February 23th
Lori Barrett Norton,
Project Coordinator, Community-Based Work Transition Program.
Lori Barrett Norton has worked with persons with significant disabilities for twenty years, including fifteen years in supported employment and three years with a school system. Her passion is learning with people about their gifts, strengths, and talents. She has experience in assisting persons to develop their own businesses, as well as supporting people in customized employment -- developing and customizing jobs based on people’s interests and skills, and facilitating supports and follow-up.
Community_Based_Work_Transition_Program.pdf (187 KB)
January 26th, 2009
Dr. Lisa Ruble will present an I.E.P. Clinic
Dr. Ruble will present research on the importance of the quality and content of Individualized Education Plans of students with autism. Information on ways to evaluate and improve your child's IEP will be shared. Please bring your child's IEP so that you can participate in an activity designed to evaluate how well your child's IEP measures up and ways you can make improvements. Dr. Ruble is a licensed psychologist and a professor in the UK School Psychology Program.
IEP_Presentation_by_Lisa_Ruble.pdf (428 KB)
IEP_Evaluation_Form.pdf (22 KB)
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