Update on HB190 Print E-mail
Thursday, 05 February 2009
1) Yesterday, HB190 was filed in Frankfort and sponsored by Rep. Scott Brinkman and Rep. Ron Crimm.
Click on the following link and it will take you to a summary of the bill. Click on the blue HB 190 and it will bring up the entire bill. Also, I have pasted the first three pages on the very bottom of this email, but this link has the entire bill.


http://www.lrc.ky.gov/record/09RS/HB190.htm

2) We have been working in collaboration with Autism Speaks, specifically their Autism Votes dept. They have officially endorsed HB190 and will be working closely with us on our grassroots effort across the state to gain support. Eight states have passed this legislation, and 20 have either introduced it or are ready to this session. Autism Speaks is supporting all these states in their efforts in addition to their efforts on federal mandates for autism insurance.

3) Autism Speaks' research to date from third party studies show that insurance premium increases are less than 1%. This is very important to communicate. They will be running the numbers for KY very soon. Dollar wise it equates sometimes to a carton of eggs each month. No longer will insurance companies think they can leave KY and go to other states to get away from this mandate -- so many others will have passed it too!

4) PLEASE help us make Kentucky the 9th state to pass this! Start by logging onto www.autismvotes.org and signing up for their action alerts so you receive all the news about HB190. This is another way they help communicate all across KY about the bill in addition to FEAT's emails throughout this process.

5) Start calling your senator and representative -- leave a message or hand-write a small note asking him/her to support HB190. If you do not know your legislator, log on this link to find out:
http://www.lrc.ky.gov/Legislators.htm


Here's a sample letter Janet wrote that is very good.

Sample letter:

Please support Representative Scott Brinkman's autism insurance bill, HB190, in order to make insurance coverage for autism services a reality. When children with autism receive appropriate services they can make great gains and improve significantly. Without such services, however, the prognosis is poor, and most will require lifelong assistance from state agencies.

Currently, autism treatments are excluded from insurance coverage and must be paid for out of pocket by individual families, causing extreme financial hardship for most, or worse, no treatment at all for the child with autism. Passage of this bill would be a life changing event for my child and my family, at minimal cost to the state.

Please help the thousands of children in this state affected by autism by voting YES for this bill.

Thank you.



6) Several of us are headed to Frankfort for Children's Advocacy Day on Thursday, Feb. 12th.
We have several meetings with legislators that day, and would love to attend in numbers!! If you can join us, please let me know soon.

If you have any questions, please ask!

Thanks,

Anne Gregory
FEAT of Louisville, Inc.
502-641-3646
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parts of the bill are below:
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Sept 27 The sixth annual Buddy Walk Print E-mail
Tuesday, 23 September 2008
The purpose of the Buddy Walk is "To promote awareness of Down Syndrome
and celebrate the capabilities of those born with an extra chromosome"
DSACK EXECUTIVE BOARD
Traci Brewer
Courtney Elbert
Ellen Fernandez
Michelle Gillam
Becky Lesch
Malkanthie McCormick
DSACK ADVISORY BOARD
The Executive Committee plus
Caroline Boeh Baesler, Parent
Karen Roof Boudreaux, Parent
Belva Collins, Ed.D., UK, Professor of,Special Education
Charles Hill, M.D., OB/GYN
Harold Kleinert, PhD., Executive Director of IHDI
Dixie Miller, Parent, Developmental Interventionist
John Riley, M.D., Pediatrician at PAA
Meg Steinman, Parent
CONTACT INFORMATION
email: This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
Mailing address:
DSACK
P.O. Box 910516
Lexington, KY 40591-0516
PHONE:(859)494-7809

Current DSACK Newsletter
Become a member or donate to DSACK

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Living with Autism Charity ride Print E-mail
Thursday, 04 September 2008
MOTORCYCLE RIDE FOR AUTISM EDUCATION SATURDAY, SEPTEMBER 6TH 2008 Write Comment (0 Comments)
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July 12 Missing Piece March at Keeneland Print E-mail
Tuesday, 08 April 2008

Please join us in Lexington, KY!

Details are posted on this site.

Keeneland Thoroughbred Race Course
4201 Versailles Road
Lexington, KY

Contact Tiffany Riddle at 606-524-1955 for details.

The walk will take place rain or shine!

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Author weaves personal experience into Annie Books Print E-mail
Monday, 26 November 2007
Fattig shares experience with Asperger’s Syndrome By Deb Egenberger November 03, 2007 During her early elementary school years, Michelle Fattig was often placed in a box at school. “I don’t mean a figurative box,” Fattig says. “I mean a real stove box. A hole was cut out in the front to allow me to see the teacher but it was meant as a preventative measure for my incessant need to chat with my neighbors.” As a child, Fattig had no idea that she was living with Asperger’s Syndrome and attention deficit hyperactivity disorder.Write Comment (0 Comments)
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new document: Autism and the Environment Print E-mail
Tuesday, 30 October 2007
The following document was posted on our web site.

Autism_and_the_Environment.pdf (1 MB)

Autism and the Environment: Challenges and Opportunities for Research, Workshop Proceedings

Forum on Neuroscience and Nervous System Disorders

ISBN: 0-309-10878-0, 364 pages, 6 x 9, (2007)

This free PDF was downloaded from:
http://www.nap.edu/catalog/11946.html
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Special Needs Charter Cruise Print E-mail
Sunday, 15 April 2007
Charter Cruise for Special Needs Families. 7 day cruise leaving Tampa, Fl last week in august. Aides will be provided by the agency sponsoring the cruise. It is very important to book the cruise through the agency offering the special needs cruise. If you book directly through Carnival, you will not be on the special needs cruise. You will get a standard Carnival cruise, none of the extra services listed on the web page will be provided. http://www.specialneedscruise.orgWrite Comment (0 Comments)
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